FAP患者の看護について、筆者はこれまでに人口肛門造設術や遺伝子診断について報告してきた。田口らは異常感覚の強い患者の苦痛緩和に向けた援助を事例報告し、海外では、Jonsenらが肝臓移植後のQOLについて報告している。しかし、FAP患者の看護について体系的に整理したものは、国内外をみても報告されていない。そこで、FAP患者の看護を体系化するための基礎的研究として、本研究では肝臓移植を受けておらず、症状が進行している4名の患者の看護記録を分析し、行われた看護内容を明らかにした。
The purpose of this study is to identify some points to take into consideration when nursing patients with advanced Familial Amyloidotic Ployneuropathy (ATTR Val30Met) who have not had a liver transplantation. We analyzed the nursing records of four cooperating patients during their stay in the hospital. In regard to their clinical symptoms, all 4 patients showed clear symptoms of a dysautonomia and a peripheral neuropathy and other general bodily symptoms. Three of them were admitted to the hospital in order to have a pacemaker inserted. One of those three patients had a marked kidney disorder as well and was having dialysis. The other patient was staying in the hospital in order to receive treatment for malnutrition, orthostatic hypotension and diarrhea. Examination of the records identified the necessity for the nursing staff to provide assistance in all aspects of everyday activities including exercises, rest, food intake, excretion and hygiene as well as assistance in their medical treatment. However, it is also important for the staff to anticipate, and cope with, such symptoms as peripheral neuropathy and dysautonomia and other general bodily symptoms that may appear as the patients' conditions progress.
雑誌名
熊本大学医学部保健学科紀要
巻
4
ページ
23 - 34
発行年
2008-02-29
ISSN
18807151
書誌レコードID
AA12010572
フォーマット
application/pdf
形態
1834279 bytes
著者版フラグ
publisher
日本十進分類法
493.12
その他の言語のタイトル
Basic Research in Nursing Patients with Familial Amyloidotic Polyneuropathy (FAP) : Analysis of Nursing Record of those Patients who have not had a Liver Transplantation
家族性アミロイドポリニューロパチー（ＦＡＰ）患者の看護における基礎的研究 : 肝臓移植を受けていない患者の看護記録の分析から
MH0004_023-034.pdf
(1.83MB)
