{"created":"2023-06-19T09:18:17.594387+00:00","id":31195,"links":{},"metadata":{"_buckets":{"deposit":"045e20de-e522-4ab5-891a-dabade846dd7"},"_deposit":{"created_by":1,"id":"31195","owners":[1],"pid":{"revision_id":0,"type":"depid","value":"31195"},"status":"published"},"_oai":{"id":"oai:kumadai.repo.nii.ac.jp:00031195","sets":["401:703","585:624:649"]},"author_link":["152795","152798","152797","152796"],"item_15_alternative_title_22":{"attribute_name":"その他の言語のタイトル","attribute_value_mlt":[{"subitem_alternative_title":"Review of the Literature on Research into Patient Associations for Patients with Intractable Diseases"}]},"item_15_alternative_title_23":{"attribute_name":"タイトル（ヨミ）","attribute_value_mlt":[{"subitem_alternative_title":"ナンビョウ カンジャ ノ カンジャカイ ケンキュウ ニ カンスル ブンケン ケントウ"}]},"item_15_biblio_info_6":{"attribute_name":"書誌情報","attribute_value_mlt":[{"bibliographicIssueDates":{"bibliographicIssueDate":"2019-03-25","bibliographicIssueDateType":"Issued"},"bibliographicPageEnd":"214","bibliographicPageStart":"205","bibliographicVolumeNumber":"17","bibliographic_titles":[{"bibliographic_title":"熊本大学社会文化研究"}]}]},"item_15_creator_3":{"attribute_name":"別言語の著者","attribute_type":"creator","attribute_value_mlt":[{"creatorNames":[{"creatorName":"Okada, Junya"}],"nameIdentifiers":[{"nameIdentifier":"152797","nameIdentifierScheme":"WEKO"}]},{"creatorNames":[{"creatorName":"Yahara, Takayuki"}],"nameIdentifiers":[{"nameIdentifier":"152798","nameIdentifierScheme":"WEKO"}]}]},"item_15_description_17":{"attribute_name":"フォーマット","attribute_value_mlt":[{"subitem_description":"application/pdf","subitem_description_type":"Other"}]},"item_15_description_46":{"attribute_name":"資源タイプ","attribute_value_mlt":[{"subitem_description":"論文(Article)","subitem_description_type":"Other"}]},"item_15_description_5":{"attribute_name":"内容記述","attribute_value_mlt":[{"subitem_description":"A review of the literature was conducted on research into patient associations for patients with intractable diseases in Japan to analyze the present situation. The online version of Igaku Chuo Zasshi was used to examine subjects of research and to collect data. Original papers retrieved using the key words \"intractable disease\" and \"patient association\" and published in or before 2000 and up to 2018 were subject to analysis. A total of 44 papers were ultimately analyzed. Ten papers (22.7%) were published in or before 2000 and between 2015 and 2018, 21 papers (47.7%) were on research in the nursing field, 28 papers (63.6%) were on research with a quantitative study design, and 26 papers (59.1%) were on clinical studies. The content of research into patient associations for intractable diseases in Japan was categorized into \"research into activities of patient associations\", \"research into the care by medical professionals,\", \"research into improving the quality of medicine\", and \"research into the needs of patients and family\". The trends suggested that most of these studies are in patients, the content of research is often \"research into the needs of patients and family\" and \"research into the activities of patient associations\", and that patient associations are an outlet for solving problems.","subitem_description_type":"Other"}]},"item_15_publisher_36":{"attribute_name":"出版者","attribute_value_mlt":[{"subitem_publisher":"熊本大学"}]},"item_15_source_id_7":{"attribute_name":"ISSN","attribute_value_mlt":[{"subitem_source_identifier":"1348530X","subitem_source_identifier_type":"ISSN"}]},"item_15_source_id_9":{"attribute_name":"書誌レコードID","attribute_value_mlt":[{"subitem_source_identifier":"AA11837081","subitem_source_identifier_type":"NCID"}]},"item_15_subject_20":{"attribute_name":"日本十進分類法","attribute_value_mlt":[{"subitem_subject":"361.65","subitem_subject_scheme":"NDC"}]},"item_15_text_18":{"attribute_name":"形態","attribute_value_mlt":[{"subitem_text_value":"436813 bytes"}]},"item_15_text_47":{"attribute_name":"資源タイプ・ローカル","attribute_value_mlt":[{"subitem_text_value":"紀要論文"}]},"item_15_text_48":{"attribute_name":"資源タイプ・NII","attribute_value_mlt":[{"subitem_text_value":"Departmental Bulletin Paper"}]},"item_15_text_49":{"attribute_name":"資源タイプ・DCMI","attribute_value_mlt":[{"subitem_text_value":"text"}]},"item_15_text_50":{"attribute_name":"資源タイプ・ローカル表示コード","attribute_value_mlt":[{"subitem_text_value":"02"}]},"item_15_version_type_19":{"attribute_name":"著者版フラグ","attribute_value_mlt":[{"subitem_version_type":"VoR"}]},"item_creator":{"attribute_name":"著者","attribute_type":"creator","attribute_value_mlt":[{"creatorNames":[{"creatorName":"岡田, 純也"}],"nameIdentifiers":[{"nameIdentifier":"152795","nameIdentifierScheme":"WEKO"}]},{"creatorNames":[{"creatorName":"矢原, 隆行"}],"nameIdentifiers":[{"nameIdentifier":"152796","nameIdentifierScheme":"WEKO"}]}]},"item_files":{"attribute_name":"ファイル情報","attribute_type":"file","attribute_value_mlt":[{"accessrole":"open_date","date":[{"dateType":"Available","dateValue":"2020-03-03"}],"displaytype":"detail","filename":"SB0017_205-214.pdf","filesize":[{"value":"436.8 kB"}],"format":"application/pdf","licensetype":"license_note","mimetype":"application/pdf","url":{"label":"SB0017_205-214.pdf","url":"https://kumadai.repo.nii.ac.jp/record/31195/files/SB0017_205-214.pdf"},"version_id":"3051239c-b865-4365-a5be-78a0627b3b10"}]},"item_language":{"attribute_name":"言語","attribute_value_mlt":[{"subitem_language":"jpn"}]},"item_resource_type":{"attribute_name":"資源タイプ","attribute_value_mlt":[{"resourcetype":"departmental bulletin paper","resourceuri":"http://purl.org/coar/resource_type/c_6501"}]},"item_title":"難病患者の患者会研究に関する文献検討","item_titles":{"attribute_name":"タイトル","attribute_value_mlt":[{"subitem_title":"難病患者の患者会研究に関する文献検討"}]},"item_type_id":"15","owner":"1","path":["649","703"],"pubdate":{"attribute_name":"公開日","attribute_value":"2019-04-24"},"publish_date":"2019-04-24","publish_status":"0","recid":"31195","relation_version_is_last":true,"title":["難病患者の患者会研究に関する文献検討"],"weko_creator_id":"1","weko_shared_id":-1},"updated":"2023-06-19T16:09:39.604060+00:00"}